In This Issue
Collaboration Achieves Travel Success (Project
CATS)
Understanding Balance Problems in Children
with CHARGE Syndrome
DVD/Video Review: We Have Contact!
Research Update
For Your Library
Conferences and Training
Opportunities
Announcements
Collaboration Achieves Travel Success
(Project CATS)
Joan Houghton, University of
Kansas Jeff Cook, Kansas State Department of Education Karen Goehl and
Lisa Poff, Indiana Deafblind Services Project Donna Wickham, University of
Kentucky
South winds blow through Wyatt, Kansas, a sleepy
border town. The air is hot and filled with the sweet scent of cattle grazing
on the range. Wyatt is one of those places that have only one stop light and
two main streets. Everyone in town knows each other, and everyone knows the
rules. Wait for your neighbor to cross the road. Always stop at the blinking
red light. Always tip your hat to those who pass by, even though they may be
strangers.
It is not uncommon to find students from Wagoner
County Middle School walking to the local five and dime after school. They
gather around the soda fountain, counting their change for ice cream floats or
malted milks. Among the students is Alonso Cardenas, a 14-year-old student who
is deaf-blind. “Next!,” shouts the waitress behind the counter.
Alonso promptly uses his Easy Speak™ and with the press of a button, a
digitized male voice delivers Alonso’s message, “I would like a
root beer float please.” “That will be 95 cents, Alonso,” the
waitress responds.
After finishing his root beer float, Alonso walks
down the sidewalk of Main Street to a corner with a red flashing light. He
enters the crosswalk without checking for oncoming cars and wanders crosswise
to get to the other side of the street. Observing this, Clyde, the only police
officer in town, stops him. “Do you need a ride to your house?”
Officer Clyde asks Alonso in a rather forlorn voice. Alonso nods his head yes
and gets into Officer Clyde’s car with a big grin on his face. Alonso
loves to ride in cars, especially police cars. This was not the first time
Officer Clyde has had to watch out for Alonso. “Why don’t they
teach him how to cross the street in school?” he thought to himself.
“I am getting tired of watching out for this kid and so is everyone else
around here.”
At the time of this example, Alonso had received
only one orientation and mobility (O & M) evaluation since beginning
elementary school. Nationally, there is a documented shortage of certified
orientation and mobility specialists (COMS), who teach children and adults with
visual impairments and blindness, and an even greater shortage of those who
teach people who are deaf-blind (Bailey & Head, 1993; Gense & Gense,
2000; Lolli & Sauerburger, 1997).
A survey of four states—Indiana, Kansas,
Kentucky, and Tennessee—conducted in 1999 and 2004 found that very few
students with deaf-blindness receive O & M instruction. The 1999 survey
indicated that among four of the five states participating in Project CATS, the
estimated number of students receiving O & M services in schools ranged
from 3 to 12. By 2004, the number of students receiving O & M services
ranged from 2 to 19.
Project CATS
Project CATS was created to address the need for
orientation and mobility instruction. Project participants developed a model
that educational teams can use to design travel and familiarization plans for
deaf-blind students, including those with multiple disabilities. The terms
“travel” and “familiarization” are used instead of the
terms “mobility” and “orientation” to describe this
process for students who do not have a COMS on their team. Project CATS is not
meant to be a substitute for O & M services, but rather it serves as a
supplemental information source for teams that do not have immediate access to
a certified O & M instructor.
The project was supported in part by a four-year
(1999–2003) matchmaker grant from the U.S. Department of Education and
involved the participation of five state deaf-blind projects: Indiana,
Illinois, Kansas, Kentucky, and Tennessee. Together they developed a Web-based
interactive media package as well as other materials that support the Project
CATS model. Project representatives in each of the five states worked with one
or two educational teams during the pilot phase of the project.
Project CATS is based on the assumption that
collaborative teams can make travel and familiarization decisions for their
students that are effective, efficient, and safe. Key principles of the model
are:
- using a collaborative team approach for decision-making and
planning;
- emphasizing the teaching of skills that students need to become
familiar with their environments and to travel safely;
- teaching skills within the context of everyday situations at
home, school, work, and in the community.
The model consists of 10 phases that guide teams
through the process of reviewing a student’s current travel
opportunities, identifying activities and travel routes where the student needs
instruction or support, selecting a goal, creating a plan to meet that goal,
and assessing the student’s progress. Teams may choose to follow all 10
phases in a sequence, or they may choose just the phases that they need. The
following is a brief description of each phase. The entire process, including
all of the necessary instructions, forms, and detailed examples accompanied by
video clips, is available on the Project CATS Web site:
http://www.indstate.edu/soe/blumberg/Deafblind.html.
Phase 1: Assemble the team.
Finding answers to travel- and movement-related
questions is best done by a team. Since issues surrounding mobility are often
complicated, each member of the team, including family members who know the
individual best, has expertise and advice to share that will ensure student
success.
Phase 2: Review current settings and
activities favorable to travel.
During this phase the team members review the
environmental settings and activities in which the student participates and
determine where travel routes or mobility patterns can be developed or
improved. If possible at this stage, they select an activity on which to
focus.
Phase 3: Explore environments and select
travel situations.
Some degree of travel or movement occurs in most
environments and during most activities. In Phase 3, team members gather
additional information about where the student currently travels or may be able
to travel in the course of his daily activities.
Phase 4: Brainstorm all possible ways to
move to, from, or through an activity.
This phase involves reviewing the movements
required by a particular route or activity and then listing all of the possible
ways that the student could perform and complete the activity.
Phase 5: Travel option comparison and
selection.
During this phase, the team selects the most
appropriate option for the student. Then, as a group, they reevaluate the
selected option, making a list of any possible risks, issues, or concerns not
previously addressed or still considered problematic by one or more team
members. They may consider bringing in additional team members to help. For
example, a team might determine that an orientation and mobility specialist
must be consulted to check a traffic-related or other safety concern, or they
may discuss with a physical therapist the risks involved for a student climbing
a set of stairs.
Phase 6: List the specific steps of the
selected option.
Once the team has selected a specific activity, it
lists the sequence of steps required to perform the activity. This is called a
task analysis, and it involves writing down the sequence of steps that a
nondisabled peer would perform to complete the same activity.
Phase 7: Complete the discrepancy
analysis.
Once the task analysis for the nondisabled peer
has been completed, the team identifies any steps in the activity that the
deaf-blind student is unable to complete. This is called a discrepancy
analysis, and it involves watching the deaf-blind student perform the same
activity as the nondisabled peer and then identifying those steps that the
deaf-blind student is able to perform independently and those that he cannot
perform independently.
Phase 8: Determine supports to address
discrepant steps.
During this phase, team members consider the types
of skill instruction, support, and adaptations that will enable the student to
complete the steps he was unable to perform independently.
Phase 9: Develop a travel
plan.
Once the team has decided what the student must do
to complete discrepant steps, team members put the entire activity sequence
into a travel plan that outlines specific objectives, measures for determining
progress, and how frequently the data will be collected and reviewed. Phase 10:
Implement the travel plan and assess progress. The team needs to determine how
well the travel plan is working by judging both the progress of the
student—ability to learn skills, use adaptations, and understand his
responsibilities—and the appropriateness of any supports that have been
provided.
Using the Project CATS
Process for Alonso
Alonso’s educational team was one of the
first to use the Project CATS model. Because they participated in the
project’s pilot phase, they received assistance during the process from
two Project CATS facilitators—Joan Houghton, the Kansas Deaf-Blind
Project Director at that time and a COMS, and Donna Wickham, the Project CATS
Kansas State Team Facilitator. Their role was to answer questions, troubleshoot
technology, and provide technical assistance based on the team’s
needs.
Alonso’s team had already been working
together for more than eight years. His team consists of general education
teachers, a teacher of the hearing impaired, a teacher of the visually
impaired, a special education consultant, Alonso’s parents, his
paraeducator (who is his job coach), and Alonso. The first time that the team
met to discuss Project CATS, they conducted a family interview to determine
what Alonso’s parents thought was most important and how they would like
to see him participate in the community. Through a translator, they were asked
what they would like Alonso to learn and they answered, “Para cruzar la
calle y caminar mientras que mira donde él va (to cross the street and
to walk while looking where he is going).” Señora Cardenas was
very concerned about her son’s safety. She said cautiously, “Me
preocupo de él que no mira donde él está camina (I worry
about him not watching where he is walking).” Based on the
Cardenas’s concerns and those of other community members such as Officer
Clyde, Alonso’s team decided that their main goal would be to teach
Alonso how to cross the street safely.
Using the Project CATS process, Alonso’s
team developed an approach to achieve this goal. They chose to focus on the
issue that seemed to cause the most problems for Alonso, the community, and his
family—his inability to cross the street safely at the lighted
intersection. They identified the steps he needed help with and responded by
providing adaptations and targeting particular skills for instruction. For
example, they realized that Alonso could enhance his residual vision if he wore
tinted NoIR™ glasses to protect his eyes from the sun and to highlight
environmental features when he traveled outdoors. They also decided that Alonso
should use an identification cane for his safety when crossing an intersection.
An identification cane alerts drivers that there is someone in the road who has
reduced vision. It would serve as a signal to oncoming motorists to stop when
Alonso entered an intersection. Several practice sessions were conducted with
Joan, Donna, and Alonso’s team members to ensure that Alonso used the
identification cane correctly.
The Project CATS process
worked very well for Alonso and his team. The final test of his ability was
when Joan drove a car near the intersection that Alonso had already begun to
cross. Under the watchful eye of his team members and Donna, Alonso, with his
head up, cane extended, and his free arm stretched in the direction of the car
to indicate “stop,” did not miss a beat crossing the street to the
other side. With a grin that stretched from ear to ear, Alonso said to himself,
“Wow! I can stop traffic!”
Unbeknownst to the team,
Señora Cardenas was driving down the opposite side of the street while
the final test was taking place. She watched with amazement. Alonso was
actually looking while he was crossing the street with his cane. During the
debriefing meeting after the session, Señora Cardenas, with tears in her
eyes, credited Alonso’s accomplishment to el bastón mágico
(the magic cane).
Through the collaborative efforts of his team and
consistent application of the instructional strategies in the Project CATS
model, Alonso gained the confidence and skill he needed to safely and
independently travel in the community. Now the Cardenas family no longer
worries about Alonso walking to and from school, his job site, or home, and
Officer Clyde no longer has to watch out for Alonso’s safety.
References
Bailey, B. R., & Head, D. N. (1993). Providing
O&M services to children and youth with severe multiple disabilities.
RE:view 25(2), 57–66.
Gense, D. J., & Gense, M. (2000). The
importance of orientation and mobility skills for students who are deaf-blind.
Monmouth, OR: DB-LINK.
Lolli, D., & Sauerburger, D. (1997). Learners
with visual and hearing impairments. In B. B. Blasch, W. R. Wiener, & R. L.
Welsh (Eds.), Foundations of orientation and mobility, 2nd ed., pp.
513–529. New York: AFB Press.
Project CATS was supported in part by the
Collaboration for Achieving Travel Success Matchmaker Project, U. S. Department
of Education, CFDA84.326C, and the Blumberg Center for Interdisciplinary
Studies in Special Education, Indiana State University, the Kansas State
Department of Education, the University of Kentucky, the Philip J. Rock Center,
and Peabody College at Vanderbilt University. The opinions expressed herein do
not necessarily reflect those of the U. S. Department of Education, and no
official endorsement should be inferred.
Understanding Balance Problems in Children with CHARGE
Syndrome
George L.
Williams The Children’s Hospital at Westmead, Sydney, Australia
Timothy S. Hartshorne Central Michigan
University
Balance problems are common in children with
CHARGE Syndrome. The vestibular system—located within the inner
ear—is responsible for equilibrium, and in children with CHARGE, the
vestibular organs are often damaged or missing. This creates problems not only
with balance, but with the attainment of gross and fine motor skills, the
coordination of eye movements, and possibly overall development and learning.
Attention to identifying vestibular dysfunction and working with children to
help them compensate for any difficulties is essential beginning early in life.
Vestibular (or balance) function has important roles in:
- detecting and responding to the earth’s gravitational
pull;
- detecting motion;
- having awareness of position in space and security in moving
against gravity;
- providing stability during body movement;
- influencing muscle tone and posture;
- coordinating movement of both sides of the body (necessary for
reciprocal activities such as skipping);
- learning to plan and carry out a sequence of movements in
proper order;
- perceiving auditory and visual stimulation;
- reacting to the environment without becoming overstimulated
(appropriate levels of alertness or calmness depend on the capacity to ignore
irrelevant stimulation and to attend to relevant input).
Children with CHARGE
Syndrome begin life with severe multisystem disorders, multiple illnesses,
prolonged hospitalization, frequent surgery and anesthesia, and multisensory
impairments. The medical and surgical aspects of care appropriately demand
priority in the first few months.
However, much brain
development depends on sensory input, especially in infancy. Early evaluation
of all sensory systems, including the vestibular sense, is necessary so that
interventions are provided to ensure optimal sensory stimulation at the most
critical times. All senses are needed for optimal and efficient development and
function.
Early Warning
Signs
A recent study (Hartshorne, Grialou, & Parker,
in press) found that 80% of children with CHARGE have difficulties with balance
and 99% have gross motor delays. Most learn to walk between 18 months of age
and 5 years, with an average around age 3. The warning signs of vestibular
dysfunction in young children are:
- poor head control;
- slow hand placing;
- resistance to position changes;
- delay in fine and gross motor skills;
- appearing clumsy, almost as if walking in the dark;
- discomfort in upright and sitting positions;
- a tendency to fall; odd body postures.
Children may demonstrate both hyperresponsive and
underresponsive vestibular function at different times. Children with a
hyperresponsive vestibular system become overwhelmed by movement and have a
strong fear of falling. They do not enjoy playground equipment, avoid rough
play, are anxious when their feet leave the ground, and dislike being
upside-down. They are slow to learn skills like climbing stairs and rely on a
railing for long periods of time. These children enjoy movement that they
themselves initiate but do not like movement by others, particularly if it is
unexpected. They dislike new activities and they have difficulty learning
them.
Children with an underresponsive vestibular system
crave movement and do not feel dizzy. They like to climb to high, precarious
places and have no sense of limit or control. They are in constant movement,
enjoy rocking or running, and like to swing very high and for long periods of
time. They enjoy getting into the upside-down position.
Anatomy and Function of
the Vestibular System
The inner ear consists
of the cochlea and vestibule and is located in the hard and dense part of the
temporal bone of the skull. The cochlea is the organ of hearing, and the
vestibule is responsible for balance or equilibrium. The vestibular system
consists of five distinct organs: three semicircular canals (SCCs) and two
otolith organs, the utricle and the saccule. In combination, these organs help
us to monitor and compensate for two different kinds of motion—rotational
and linear.
The SCCs, are connected to
the utricle at right angles to each other, an arrangement that allows them to
accurately detect head rotation. The three SCCs are called anterior (superior),
posterior (inferior), and lateral (horizontal). They play a major role in
vision by keeping the eyes steady when the head moves. The vestibulo-ocular
reflex (VOR) is the system that detects rotations of the head and
counter-rotates the eyes in the opposite direction to stabilize the line of
sight. To illustrate, move your head while reading this line. Your eyes should
be able to stay focused on the words. Without SCCs, this would be extremely
difficult.
The otolith organs detect linear motion (along a
line). The utricle monitors motion in the horizontal plane (back and forth,
liking riding in a car and knowing that you are going forward or backward), and
the saccule detects motion in the vertical plane (up and down, like taking an
elevator and noticing that you are moving up or down). Static equilibrium
refers to orientation of the body (mainly the head) relative to the ground.
Specialized sensory receptors called the maculae are located in the utricle and
saccule and are responsible for static equilibrium. They provide sensory
information about head position in space and maintain posture as we stand or
sit. If you start to tilt, they will automatically compensate by helping you to
adjust back to upright.
The basic mechanism for detecting motion in the
vestibular organs is hair cells that are covered by a gelatinous material. When
the head is turned or the body moves, the gelatinous mass flows over the hairs
and bends them. The movement of the hairs stimulates the sensory neurons and
transmits nerve impulses to the brainstem.
In addition to a properly functioning vestibular
system, the integration and maintenance of equilibrium requires input from the
eyes (vision), the cerebral cortex of the brain (consciousness and alertness),
muscles and joints (proprioception), cochlea (hearing), and the tactile sense
(touch). All of these may be affected by CHARGE Syndrome.
Assessment of Vestibular
Dysfunction
Vestibular function may be assessed at any age
with assessments that are adapted for age and development. However, the most
detailed and accurate assessment is best attained in an appropriately equipped
and staffed neuro-otologic laboratory after the age of 6 years.
Clinical
Tests
A variety of clinical tests are available for the
assessment of vestibular dysfunction. In a clinical evaluation, a physician
will assess the following:
- Delay in developmental milestones, not in itself an indication
of vestibular dysfunction, but an expected outcome of vestibular dysfunction;
- Eye wobble (nystagmus) at rest as the eye tries to stay focused
on an object or scene;
- Worsening of nystagmus with sudden head movement;
- Gait and stance disturbance when walking in line, veering to
one side, heel to toe walking, standing on one leg, hopping in a circle,
standing on a tilt board or foam rubber, or marching (all these maneuvers are
worsened by eye closure).
Other clinical tests include formal testing of
physical ability and sensory function with instruments such as the Sensory
Integration and Praxis Tests by A. Jean Ayres (1989) and neuro-otological
testing. Neuro-otological tests are performed in a laboratory with special
equipment.
Imaging
Tests
Computerized axial tomography (CAT) is used to
evaluate the structure of the inner ear. In children with CHARGE the
semicircular canals are usually absent or poorly developed. Abnormalities of
the utricle, saccule, cochlea, and ossicles (small bones within the inner ear)
are also possible. Magnetic resonance imaging (MRI) of the inner ear has the
same diagnostic ability as CAT but is more expensive.
Activities to Enhance
Vestibular Function
Attention to vestibular dysfunction should be a
part of the developmental and educational programs of all children with CHARGE
Syndrome, and the support of an occupational therapist and physical therapist
is essential. Because loss of the vestibular sense can affect visual,
proprioceptive, tactile, and potentially other senses, sensory integration of
multiple systems is problematic. Enhancement of vestibular function will be
assisted by the following:
- When positioning young babies, move slowly and securely from
one position to the next.
- When positioning a child in a chair, make sure that the
child’s torso is stabilized so that the hands are free for play and touch
activities.
- Allow children to be actively involved in their own movement.
For example, letting children push themselves on scooters or letting them
signal when to stop or start a motion such as swinging allows them to more
actively control their own movements. For the vestibular mechanism to be
adaptive, movement should be provided in all planes and in all directions, and
the type of movement should be varied.
- Provide stimulation only in the context of a child’s
developmental needs. Choose activities that are suitable for the child’s
level of maturity and can compensate for any sensory deficits.
- Select activities that provide ocular input, such as switching
on the lights for a tunnel activity or attaching a flashlight to a scooter
bike. This will provide visual stimulation.
- Remember that vestibular dysfunction can affect ocular
coordination. This, in combination with coloboma (a fissure of the eye), can
result in significant visual impairment, even with good acuity.
- Enhance proprioceptive input through the use of weighted
objects, firm pressure to joints, movement against gravity, traction, and
resistive activities. For example, play activities might include using a
trampoline, playing tug-of-war, and catching weighted balls or bean bags. Some
children enjoy weighted vests or blankets.
There are also many things that parents can do on
an ongoing basis to help enhance a child’s vestibular function. Maximize
your child’s visual, auditory, and communication input. All of the senses
need to be developed to help a child learn to compensate for the lack of a
healthy vestibular sense. A total communication approach is helpful to
stimulate as many sensory channels as possible. The use of body and finger
signs can provide extra stimulation.
Assess your child’s preference for light or
firm touch. This preference may change over time, or at various times, and many
children with sensory impairments are tactilely defensive and find touch
difficult to tolerate. Tactile stimulation is important, and so engaging in
touch, in line with the child’s preference, is important. Minimize
sensory experiences that are overstimulating. Loud noises, for example, can
startle and upset the balance of a child with vestibular problems. They need to
be able to concentrate to maintain their balance.
Be alert to safety needs. At home, provide
handrails and smooth walking surfaces and eliminate steps where possible.
Supervise bathing, swimming, skating, and other activities. Consider the need
for a helmet and knee or ankle pads during sports and activities. Keep training
wheels on bicycles until competence is achieved. Have your child wear goggles
when swimming, and be careful about diving. Avoid dangerous sports such as
surfing.
References
Ayres, A. J. (1989). Sensory integration and
praxis tests. Los Angeles: Western Psychological Services.
Hartshorne, T. S., Grialou, T. L., & Parker,
K. R. (in press). Autistic-like Behavior in CHARGE Syndrome. American Journal
of Medical Genetics.
DVD/Video Review: We Have Contact!
Lisa A. Jacobs DB-LINK
Information Specialist Perkins School for the Blind Educational
Consultant
Imagine my surprise when I was asked to review a
new DVD from Australia while preparing a presentation for an upcoming
international trip to train teachers to work with children with multiple
disabilities, including deaf-blindness. It was like hitting the jackpot before
going on a shopping spree. The DVD (also available in video format) is called
We Have Contact! It was developed in Western Australia and is quite a gem of a
training tool. It has a friendly yet professional style, with clear concise
language explaining the principle of establishing a personalized communication
system rather than using a standardized communication approach when
communicating with deaf-blind people. The video footage introduces a variety of
types of learners and their communication styles. The underlying theme is
respect for the individual and meeting a child where he or she is.
Many of the principles I was planning to discuss
with the teachers were beautifully demonstrated in the video including
identifying yourself in a consistent way to a child who is deaf-blind, the
importance of recognizing that all behavior is communication, using touch cues
to let the child know that you are in his space, following the child’s
lead, and waiting for the child to process information before moving on to the
next topic of conversation. All of these principles are based on taking
advantage of everyday life experiences to communicate with the child about the
world around him. Additionally, there is some nice video footage of an older
deaf-blind man that shows how to incorporate the same principles of respect,
use of touch or object cues, and following the person’s lead. For further
information, contact Deafblind Specialist Services, Senses Foundation, Inc.,
134 Whatley Crescent, PO Box 14, Maylands, Western Australia 6931. E-mail:
db@senses.asn.au. Web: http://www.senses.asn.au. You will be pleased that you
added this resource to your training toolbox.
Research Update
Peggy Malloy Managing Editor
“Research
Update” is a regularly recurring feature consisting of announcements
related to research in deaf-blindness. Researchers and other interested
individuals or agencies may use this column to share information about new,
ongoing, or recently completed research projects and new publications. If you
have information about a research topic that you would like to include,
contact:
Peggy Malloy
malloyp@wou.edu 503-838-8598
(V/TTY) Teaching Research Institute Deaf-Blind Perspectives 345 N.
Monmouth Ave. Monmouth, OR 97361
Research Project Update:
Promoting Communication Outcomes through Adapted Prelinguistic Milieu Teaching
for Children Who Are Deaf-Blind
Submitted by Nancy Brady and
Joan Houghton University of Kansas
History.
Communication is a primary concern for children who are deaf-blind. A number of
different intervention approaches have been tried in recent years, in an effort
to address communication difficulties between children with deaf-blindness and
their communication partners. However, a substantial need exists for research
demonstrating which strategies work best. One of the greatest needs is for
research-based approaches for children whose communication abilities are at a
prelinguistic level (before the development of language). At present, the most
well-researched strategy for promoting prelinguistic communication is
Prelinguistic Milieu Teaching (PMT). This strategy focuses on increasing a
child’s rate and variety of prelinguistic communication, including
conventional gestures and vocalizations. In the PMT model, children are taught
to communicate within motivating, naturalistic routines, and their primary
communication partners are taught to respond to their communicative attempts in
appropriate ways. Prelinguistic Milieu Teaching has proven effective for
increasing prelinguistic communication skills and has been associated with
improved language outcomes for children who have significantly delayed language
associated with cognitive disabilities. This set of teaching strategies has
not, however, been implemented with children who are deaf-blind.
Purpose. The purpose of this
current research project is to study the effects of adapted PMT strategies with
12 students in the northeast Kansas area. The intervention will also be
replicated in Wichita and Indiana. Researchers from the University of Kansas
and Indiana State University have developed an assessment protocol to measure
the communicative behaviors of young children who are participants in the study
using Dimensions of Communication (Mar & Sall, 1999) as a framework. The
assessment framework consists of (1) family interviews; (2) videotaped
observations of the child during unstructured activities, structured
instructional activities, and meal time (at least one of these activities needs
to be with peers); (3) vision, hearing, and cognitive records; (4) 10
structured assessment activities designed to provide children opportunities to
request and to comment; and (5) the Promoting Communication Outcomes (PCO)
Environmental Checklist, a tool developed by the project investigators for this
study. This assessment protocol will be used to measure communication
development during baseline and pre- and post-intervention phases.
Current Status. Over 12
participants between the ages of three and seven years are participating in the
study. Currently, baseline data are being collected on children from the
greater Kansas City area, Topeka, and Lawrence. A coding manual of intentional
communicative behaviors is being developed. Coding of the videotapes will be
conducted within the next two months. The results of the assessments and data
coding will determine participant eligibility. At the end of the six-month
baseline period, assessment data will be collected to determine any
communication development. If the participants continue to qualify, they will
be divided into groups of three. Each group will participate in structured
intervention activities one hour per day, four days a week. Additional
participants will be identified from Wichita and from Indianapolis and
Evansville, Indiana, during the third year of the project.
. Life Span Institute of the
University of Kansas (Nancy Brady, Ph.D., Susan Bashinski, Ph.D., and Joan
Houghton, Ed.D.) and The Blumberg Center for Interdisciplinary Studies in
Special Education, Indiana State University (Karen Goehl, M.S.).
References
Mar, H. H., & Sall, N. (1999). Dimensions of
Communication. New York: Published by the authors.
SKI-HI Receives Grant for
Training Paraprofessionals
Submitted
by Gail Leslie, DB-LINK
The use of
paraprofessionals for children who are deaf-blind is a practice that has
increased substantially over the past 10 years. In recent years, state
deaf-blind projects have worked to provide training to paraprofessionals on an
in-service basis, but there has been growing recognition of the need for
paraprofessional competencies and a standardized training curriculum. A new
project, the Consortium for National Paraprofessional Training in
Deafblindness, at SKI-HI Institute is the first project to address training and
competency issues on a national level.
The project, funded by the
U.S. Department of Education’s Fund for the Improvement of Postsecondary
Education (FIPSE), will develop a three-course curriculum for paraprofessionals
who work with students who are deaf-blind in K-12 programs, including those who
have multiple disabilities. The new curriculum will be developed by a
consortium that includes professionals in the field of deaf-blindness, state
deaf-blind projects, four academic institutions, DB-LINK, the Community of
Practice Focusing on Interveners and Paraprofessionals, and the National
Paraprofessional Consortium. The curriculum will then be made available via
distance education through community colleges and two-year programs. During the
first phase of implementation, the project curriculum will be integrated into
preservice programs at institutions in four states: Salt Lake City Community
College (UT); Mount Wachusett Community College (MA); South Plains Community
College (TX); and the University of Arkansas-Little Rock (AR). The consortium
will continue to work collaboratively to ensure the replication of the training
beyond the grant cycle.The grant began October 1, 2004, and is funded for three
years. For additional information, contact: Linda Alsop, SKI-HI Institute, Utah
State University, Logan, UT 84322. Phone: 435-797-5598 E-mail:
lalsop@cc.usu.edu.
For Your
Library
DB-LINK Web Site
http://www.dblink.org The DB-LINK Web site has been updated. The site
contains a wealth of information about deaf-blindness including full text
information arranged by topic, access to DB-LINK’s products and
publications database, and contact information for local, state, and national
resources. As always, DB-LINK’s services are also available by phone at
800-438-9376 (800-854-7013 TTY) and e-mail (dblink@tr.wou.edu).
American Sign Language Online Video
Library http://www.needsoutreach.org/Pages/sl.html These
online video clips present American Sign Language (ASL) signs that can be used
in academic classes for students in elementary grades through high school.
Categories of signs include biology, countries, geography, government,
mathematics, and history. Signs for auto mechanics and physics are being
developed. This resource was developed by Needs Outreach in San Diego.
Computer
Tutorials for Deaf-Blind Individuals Iowa Department for the
Blind
The Iowa Department for the
Blind received a grant from the National Institute on Disability and
Rehabilitation Research (NIDRR) to create 45 computer training tutorials for
deaf-blind individuals. The first two tutorials are now available: 1) Microsoft
Windows XP with JAWS 4.51 and the ALVA Satellite 570 Tutorial for Beginners;
and 2)Microsoft Windows XP with JAWS 4.51 and the Focus 84 tutorial for
Beginners. For more information contact Project ASSIST With Windows, Iowa
Department for the Blind, 524 Fourth Street, Des Moines, IA 50309-2364. E-mail:
ASSIST@blind.state.ia.us or walker.brian@blind.state.ia.us. Phone:
515-281-1317. http://www.blind.state.ia.us/assist/deafblind-tutorials.htm
Perkins Activity and Resource Guide: A
Handbook for Teachers and Parents of Students with Visual and Multiple
Disabilities (2nd Edition) Perkins School for the Blind, 2004
This revised and updated edition provides practical information for those who
teach and care for children with visual and multiple disabilities. This book
promotes a functional, child-centered approach to learning by addressing the
basic principles of teaching children with multiple disabilities. In addition,
it provides sequential checklists and a variety of lesson plans in major areas
of instruction. Phone: 877-473-7546. E-mail: publications@perkins.org. Web:
http://www.perkinspublications.org.
First Things First: Early Communication
for the Pre-Symbolic Child with Severe Disabilities Charity
Rowland & Philip Schweigert. Oregon Health & Science University,
2004. This book describes instructional strategies for teaching early
communication skills to children with severe disabilities who are not yet ready
to use symbols to communicate. It provides strategies for teaching children how
to use pre-symbolic behaviors such as gestures, facial expressions,
vocalizations, and switches to gain attention, to request more, and to
communicate choices. Available from OHSU Design to Learn Products: Phone:
888-909-4030, ext. 108. E-mail: design@ohsu.edu. Web site:
http://www.designtolearn.com.
Conferences and Training Opportunities
The following is a list of some upcoming
conferences and other training opportunities. For a more extensive list, go to
the DB-LINK Web site (http://www.dblink.org) or call DB-LINK. Phone:
800-438-9376. TTY: 800-854-7013.
Congenital Rubella Syndrome: 40 Years
after the Epidemic March 14-16, 2005, Sands Point, NY At this
international symposium sponsored by the Helen Keller National Center, invited
guests and speakers from around the world will discuss the current status of
congenital rubella syndrome (CRS), including the history of CRS, late onset
manifestations, CRS around the world, immunization efforts, and research.
Contact: Nancy O’Donnell. Phone: 516-944-8900, ext. 326. E-mail:
hkncnod@aol.com.
Communication Strategies for Children with
Deaf-Blindness and/or Multiple Disabilities Oklahoma Department of Human
Services Governor’s Conference on Developmental Disabilities
April 4–5 2005, Tulsa, Oklahoma This presentation will be part of the
Governor’s Conference on Developmental Disabilities. Participants will
learn how to encourage communication and select specific communication modes to
fit the individual needs and abilities of children with multiple disabilities.
Contact: Oklahoma Developmental Disabilities Council. Phone: 800-836-4470.
E-mail: OPCDD@aol.com. Web: http://www.okdhs.org/ddsd.
8th Helen Keller World Conference and
World Federation of the Deafblind 2nd General Assembly June
3–7, 2005, Tempere, Finland The theme of the conference is “Our
Right to be Deafblind with Full Participation in Society.” E-mail:
contact@helenkeller2005.com. Web: http://www.helenkeller2005.com.
7th International CHARGE Syndrome
Conference July 22–24, 2005, Miami, Florida Contact the
CHARGE Syndrome Foundation for more information or if you would like to help
with conference planning. Phone: 800-442-7604. E-mail:
conference@chargesyndrome.org. Web: http://www.chargesyndrome.org.
Helen Keller National Center
National Training Team 2005 Seminar Calendar |
May 15–20
|
Orientation &
Mobility Techniques for Deaf-Blind Travelers |
Aug 20–23
|
Interpreting
Techniques for the Deaf-Blind Population |
September 12–16
|
Enhancing Services for
Older Adults with Vision & Hearing Loss |
October 17–21
|
Transformation:
Person-Centered Approach to Habilitation |
November 14–18
|
Expanding the Arena:
The Magic of Technology |
Contact: Doris Plansker. Phone: 516-944-8900, Ext.
233. TTY: 516-944-8637. E-mail: ntthknc@aol.com. Web: http://www.hknc.org.
Announcements
Dr. Jeffrey Bohrman
Inducted into National Hall of Fame for Persons with Disabilities
Dr. Jeffrey Bohrman was inducted into the National
Hall of Fame for Persons with Disabilities at a recognition ceremony on
November 6, 2004. Dr. Bohrman is deaf-blind due to Usher Syndrome. He is
nationally recognized as a leader in the field of deaf-blindness and is the
Director of the Ohio Deaf-Blind Outreach Program at the Columbus Speech and
Hearing Center in Columbus, Ohio. He has received a number of honors and awards
for his educational accomplishments and for his work to help people with
disabilities gain increased quality of life and independence. He served for
many years on the board of the American Association of the Deaf-Blind and is
currently a board member for the World Federation of the Deaf-Blind and the
National Technical Assistance Consortium for Children and Young Adults Who Are
Deaf-Blind. Dr. Bohrman began his career as a scientist. He has a Ph.D. in
Pharmacology and worked for ten years as a research toxicologist at the
National Institute for Occupational Safety and Health.
Up to five individuals are inducted
into the Hall of Fame each year at the recognition ceremony. Eligible
candidates include persons with a physical or mental disability that presents a
challenge to their ability to function in everyday activities. Consideration is
given to an individual who has a significant disability; is a high achiever in
overcoming obstacles, handicaps, or limitations imposed by a disability; is a
high achiever in a vocational or professional area; is a significant
contributor or benefactor to humanity; is nationally recognized for his or her
accomplishments; and is a recipient of previous honors, awards, or
recognitions. Previous winners have included Helen Keller, Robert Smithdas,
Franklin D. Roosevelt, and James Brady.
Call for Papers (Getting
in Touch with Literacy Conference)
The Getting in Touch with Literacy Conference,
dedicated to the literacy needs of individuals of all ages with visual
impairments and deaf-blindness, will be held in Denver, Colorado on December
1-3, 2005. Proposals for concurrent or poster sessions should address an aspect
the conference theme, Living Literacy, which reflects the role of literacy in
all facets of life. Proposals are due by February 21, 2005. For more
information, go to http://www.gettingintouchwithliteracy.org.
Los Angeles Area Support
Group for Deaf-Blind Persons
M.G. and Sanjay Shah are interested in forming a
support group for deaf-blind adults in the LA area. If you would like to join
or need more information, contact: Mr. M.G. Shah, 1750 Deerwood Drive,
Fullerton, CA 92833-4810. Phone: 714-879-1840 (Voice/TTY). E-mail:
sanjaymshah@msn.com.
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